Blood Pressure

Dysautonomia can affect many Ehlers Danlos Syndrome patients. It is the dysfunction of the autonomic nervous system (ANS) and the symptoms can be quite debilitating. Most commonly, patients complain of resting tachycardia (elevated resting heart rate), orthostatic hypotension (blood pressure is too low when standing up), breathing issues, gastrointestinal and genito-urinary issues, and excessive sweating. 

POTS, or Postural Orthostatic Tachycardia Syndrome falls under the dysautonoia umbrella. It is a condition where your heart rate is increased by 30 beats per minute (BPM) upon going from a lying down to a standing position. 

I had a recent bout myself of a flare, and it was not fun! There are a few things we can do to help alleviate dysautonomia and POTS symptoms that don’t require the use of medications. However, sometimes medicine is necessary. If you find yourself feeling any symptoms, call your physician. 

From a nutrition perspective, it is very important to have the right ratio of fluid and electrolytes in the body. It is advisable to consume two liters of water per day. While most people are told by their doctors to limit salt intake, POTSies need their salt. The general recommendation is to consume 3-5 grams of salt per day. Diet can also play an important role. Limiting carbs and eating lean proteins can improve symptoms. Caffeine and alcohol can also contribute to worsening of symptoms. It is also important to address any nutrient deficiencies, as some of them can contribute to symptoms as well. 

Dysautonomia and POTS are complicated syndromes and require a skilled practitioner to help navigate. Nutrition is known to play a large role in the exacerbation of symptoms. Sometimes it is hard to tell which symptoms are from Ehlers Danlos Syndrome and which are from dysautonomia. Seek the help of a registered dietitian or physician (who specializes in this condition) if you experience a flare. Sometimes careful analysis of diet, supplementation, hydration, and activity with a skilled practitioner can find the trigger and help you to feel better.